Jumping Rainbows

10… 9… 8… 7… 6… 5… BREATHE!

As very few of you know, on May 25th, I was diagnosed with partial seizures.  When most people hear the word "seizure", they think of collapsing and/or full body shaking.  That's not what mine are at all.  Mine started out as what I called "interruptions and speech".  Progressively these interruptions became more frequent, and when I got to the point where I was having them several times a day, I decided that I was going to mention them to one of the doctors I was seeing at the time, and see what she had to say.  She really wanted me to see a neurologist as soon as possible because she knew how important my words are to me, and how important they've always been!

I got in to see him within just a couple weeks, and I could tell by the look on his face when I started telling him the types of symptoms that was having that he knew right away what I had been suspecting all along.  I was having some sort of seizure.  Knowing though was the easy part.  Treating them, and treating them effectively was going to be much more of a challenge!  Our first step in deciding how to do this was a 24 hour EEG.  This would show him what my brain was during an entire 24 hour period, including while I was sleeping, which, believe it or not, is usually the most active time of day for most seizure patients.  As he, mom, and I suspected it would, it did show seizure activity.

He and I decided that since I was already on a drug for nerve pain that's also sometimes used as an anti-seizure drug, we would experiment with just increasing the dosage of that first, rather than messing with adding a new drug if we didn't have to.  This worked better than I was expecting for a long time.  For almost a month, I was COMPLETELY seizure free!  This is what he and I both want!  Then, about a month ago, I started getting down right EXHAUSTED when I read for more then about 20 minutes!  If didn't stop reading right when I felt it coming it wasn't long before I would throw up. 

I brought this to his attention when I saw him on the 9th of this month.  I also told him I thought it was a seizure.  He agreed, and said that he didn't think we were treating them aggressively enough.  So, he writes me a script for Keppra, an actual seizure drug.  When Mom inquired about side effects, he said there weren't many, but did make it VERY CLEAR that strong irritability was possible!  However, he wasn't super concerned because the nerve pain drug SHOULD counteract that!  Though the length of time I'm able to read HAS IMPROVED, he was DEAD WRONG about the nerve pain med counteracting the irritability!  About three days after starting it, I started becoming a FULL ON WENCH, and it just went down hill from there!  Last week, I wanted NOTHING to do with anybody or anything!  That's a bit difficult given the situation!  Smile

That's the reason for this post.  I'm TRULY SORRY to all those I've hurt or ticked off as a result of my VERY UNPREDICTABLE emotions!  Believe it or not, I REALLY, truly love YOU ALL! Kiss  Please hang with me during this somewhat difficult time, and KNOW that if I say or do something STUPID in your presence because I FORGOT TO BREATHE, chances are HIGH you didn't do ANYTHING!  THANKS FOR BEING SO INCREDIBLY understanding!  SmileKiss

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