Amber's Abode

A lousy vacation

Well, I really don't recommend a hospital stay as a vacation.  That's where I was for the last week while they tried to get to the bottom of this infection and extreme side effects thing.  They finally set me free from all of the antibiotics, and apparently the bladder infection is gone, but I'm still more than slightly nauseated today, so I'm not sure exactly what is wrong. 

There wasn't much good to report inside the hospital.  Just a lot of sleeping and stupid daytime TV that I don't usually watch.  But I got to connect with a couple of really good nurses, one of which has a one-year-old son with the same variety of cerebral palsy as me.  So she was excited to meet me and see that I was so with it and together.  Little does she know.  She asked for advice.  All I could think to say was let him be who he is and try not to make him any more or less than whenever that will be.  We were going to stay connected, but she hasn't contacted me at this point yet.

We're going to try to start with a new home health organization.  And the one that neglected me has been reported to adult protective services.  So hopefully things will change.  Naturally I'm skeptical.

But for now it feels good to be in street clothes for the first time this month and to be able to go out of the house.  I'm not sure what to do first, but I know what I'm doing tomorrow.

Yes!  Amber gets a big kid drink and hugs from seemingly long-lost friends in her favorite "living room!" How wonderful it is to actually feel 30 again.

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